Isaac and I went for his follow-up appointment with the specialist this afternoon, and it was very positive. His lungs sounded fabulous, and he had gained 2 pounds in less than a month, so they were very happy with his progress. After talking with two doctors at the practice (our specialist always has to call in another doctor for some unknown reason), we determined the following:
-- Isaac doesn't need to be on oxygen when he sleeps anymore.
-- His use of the albuterol puffer is changed from 3x daily to only as needed.
-- When he finishes up his course of steroids (one more week, taking 1.3 mL), he won't need more.
-- When he finishes up his course of low-dose antibiotics (two more weeks), he won't need more.
-- We'll regroup and follow-up again in three months, at which point we might decrease his other puffer med, too.
-- For the time being, he will stay on the acid reflux medicine.
So that was all very good, and we are relieved. I got the impression that our specialist felt like the attending at the hospital was overreacting, but he was very junior to him and couldn't do anything about it. The other doctor from the practice who came in to talk to me said that we still don't know exactly what is causing his high breathing rate, but that it really could just be nothing -- something that he will outgrow. We are still waiting 2-4 more weeks for the results from the blood test from the hospital for a bunch of rare lung conditions, but this doctor said that he didn't expect those to come back positive, that if he had a problem as severe as that, it probably would have shown some signs during the other tests.